I want to dedicate this post to a very brave little girl by the name of Hayley Okines, after seeing a truly touching documentary on television this evening.
Hayley is a twelve year old British girl who suffers from the debilitating and life-threatening disease called Progeria. There is only one more child in Britain who suffers from the same disease and an estimated one in eight million chance of anyone being born with it. Please read on to learn more about this incredible girl and be inspired by her bravery.
Hayley is a twelve year old British girl who suffers from the debilitating and life-threatening disease called Progeria. There is only one more child in Britain who suffers from the same disease and an estimated one in eight million chance of anyone being born with it. Please read on to learn more about this incredible girl and be inspired by her bravery.
"Her parents from Bexhill, East Sussex, were horribly aware that the average lifespan for a child with progeria is only 13 years old and Hayley was devastated when she lost her best friend to the disease in 2006.
Hayley is one of the first progeria children to try a new class of drug called FTIs (farnesyltransferase inhibitors). These were found to reverse an abnormality in progeria cells in the laboratory and also prevented symptoms developing in progeria mice.
The family were well aware of the risks involved so early on in the trial. However Kerry, 36, said: 'At the end of the day we have got nothing to lose."
Read more: http://www.dailymail.co.uk/health/article-1286481/Progeria-schoolgirl-Hayley-Okines-body-96-year-old-refuses-let-rapid-aging-disease-win.html?ITO=1490#ixzz0qrehPLwP
More information on Hayley can be seen on her page http://www.hayleyspage.com/ or www.facebook.com/group.php?gid=25772240351
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